My 11 year old son was diagnosed about 2 years ago with a very rare neuromuscular disorder. To make a long story short we meet with some friends at the part last Friday. He was playing on the monkey bars, I was helping him making sure that he didn't fall. When he felt his muscles in his back pull. Now for most kids a couple of days and they would be better, but with him its is more like a couple of weeks. Every time you touch his back he screams in pain, because it feels like needles and pens being poked into his back. Please pray for him and for us as we go through this time. When he was diagnosed he had hurt his arm and had the same symptoms. We saw several specialist and they thought it was just a pinched nerve he had 3 nerve blocks and nothing helped. Finally we saw a neuromuscular specialist and after a muscle biopsy we found out what was causing his pain. The nerves in the muscles are all messed up they shout pain when no pain is there, making him have those needle and pin feelings. There is really nothing that they can do. If he gets hurt, the pain is worse when he gets cold and eases up when its warm. Thank goodness it is not cold here. He also was told that he could never play any contact sports because of the threat of getting hurt. They also said that if he tore, or severely stained a muscle that he would hurt for up to 6 months. This is so much for an 11 year old to handle he has to be extremly careful when playing. He is unable to do somethings that boys his age love to do.
Vicky I am so sorry for your sweet little boy! I will pray that the pain eases up. Does heat help or soaking in a bath tub? Are you allowed to give him anything for the pain? I hurt when my kids hurt. I will pray for him right now.
Right now Crystal he is using a heating pad. But really nothing helps because there is nothing wrong with the muscle. It makes me hurt also when he is hurting. I hate it when he is in so much pain that he cries. And there is nothing I can do. He is some better today he is outside right now sitting in his tree house with his dog and sister. I can only wish an tylenol would take the pain away but no type of med will do that. Only in time will the pain stop. Last time it was 3 months. I just hope that its not that long this time.
Oh I hope it doesnt take that long too. I will keep praying for him Vicky. Glad he is feeling better today.
Oh the poor little guy. I know what he is going through. theres alot of pain and no help. We will pray for him too.
Thank you all for praying. It must be working because today he said that he didn't hurt one bit. Yeah
I hope he continues to do well Vicky! We'll keep praying that this doesn't happen to him again, poor guy!
Seems to be getting better. As long as the weather is warm he will be fine. I just hope he doesn't get hurt again.
He has his days. The weather is fixing to get very cold here in the 20's and 30's. He just has to put on layers of clothes to keep his muscles warm. He won't be able to go out to much just to walk the dog or to take out the cat boxes. I hope he will continue to get better.
