Another Praise! Jeremy's doctor that he's had for years says he no longer has the Crohn's disease that he used to have. Some of his newer doctors disagree, saying that the chemo and radiation and BMT and all that have "suppressed" it for now, but his long-time doctor says you can't "suppress" something that's not there!!! I'll find out later about the ITP blood thing that was his most recent diagnosis before the lymphoma that he no longer has....
Jeramy's not released from his doctors yet. He's having trouble gaining enough weight. He has to go to clinics still, kind of frequently. Last week they taught him how to put his own NG tube down, so that he can receive some industrial-strength nutrition stuff from 6pm in the evenings to 9am the next morning. He eats, but just can't ingest enough calories yet.
Will keep praying now focusing on the weight gain and strength to his body! I pray for my family for strength to thier body and morrow for thier bones I will pray for this for Jeremy now! Thanks for the update!
Here's the latest update, from Jeramy's mom. He still has to go to clinic periodically for regular checkups and lab work, and was there this morning. the labs from Wednesday were back and the results were excellent. Jeramy is doing so well in fact they are decreasing the liquid steroids that he has been on for the graft vs. host disease and the bone marrow results from 2 weeks ago said that he is now 100% en-grafted (his blood cells are 100% his daddy’s…..oh my) and as we shared in the last post he is CANCER FREE. Almost all of the viral studies are back and they are all negative also. They were looking for mono, CMV and other things that have affected him in the past. They are also decreasing his immunosuppressants and the magnesium. So this means his pill box is shrinking and we are thankful. All the medicines have certainly worked but of course there are side effects that we would rather not have to deal with if necessary. Where the central line was has now healed completely, it was not stitched up, it healed on its own, but the spot where it was has a scar that looks exactly like a heart. Jeramy wears a shirt that says “Scars are like tattoos but they tell better stories”.
That is so cool! thanks for sharing the update! whoo HOo! will keep in prayer just as often as the Lord brings Jeremy to rememberace!
About 600 people are wearing green plastic wristbands with his name and a scripture verse on, to remind ourselves and others to pray. His dad and mom have taken theirs off now, but I'm going to keep wearing mine until his doctors tell him he's released for good! The doctors told him today he doesn't have to come back to clinic for 3 weeks! WooHoo! We have VBS this week, but the next week he, his mom, and a friend are going to Florida where the grandparents live, for about a week.
Bringing this back up again, to tell you all that Jeramy is officially a college Freshman! He's going to do 12 credit-hours online for the fall semester, so he can work awhile and nap, work awhile, rest some, etc. He's hoping that in January he can actually go to campus for SOME classes, and still do some others online. WooHoo! BTW, Jeramy is an uncle to his two new neices, Emma and Amelia, one in TX and one in NC... These two are the first grandchildren for our pastor and his wife - they raised three boys -- ya THINK they'll try to spoil these two little girls???? LOL
Okay, folks, let's crank it up again! Jeramy was admitted to the hospital today for blood and antibiotics. Tomorrow, he's going to have another bone marrow biopsy, a scope down his gullet, and one up the other direction with biopsy. Poor baby! Hopefully he won't have to stay in hospital too terribly long... He's been having trouble keeping weight on.
Lord, what an amazing young man You have created! Keep him strong and healthy in Jesus's name to continue to praise You with his life!!!!
All his tests were done and the procedures went well, although they have to wait for results. The doctors wanted to do a "swallow the barium and follow it all the way through the system" kind of check, but they decided to wait until the results of the biopsies come back. So they let him come home today - he'll be home at whatever time they let him out plus 12 hours... There is no sign of his Crohn's Disease returning.
Time for an Update Jeremy started college this past fall, doing only online classes, but he ran into some problems and had to drop out. Apparently, nobody warned them about the "brain fog" that continues for awhile as a result of the chemo and radiation he had to undergo. Just before Christmas, they did some cognitive tests and things, to see whether it will be possible or likely for him to be able to graduate college and become an engineer like he wants to, or whether he might should plan for a different career goal. (Naturally, the family and friends are keeping this in prayer.) :angel: The tests confirmed that he didn't actually lose IQ points, and there's no reason why he won't be able to become an engineer - eventually. The "brain fog" is continuing, and he's not able to focus on his lessons for more than about 15 minutes at a time. The hospital has written a letter to his college, verifying what he has and why, so that special considerations can be arranged for. He plans now to re-enter this month, but only for one class which he will physically attend on campus. He has a job, which he has returned to only one day a week, but praise God he was able to return at all! He is cleared to drive. He just went back to the hospital the day after Christmas, because the Graft vs Host Disease was back and causing him to lose weight because of digestive problems (vomiting and diarrhea). He was in the hospital a couple of days, and is/was on steroids again to get it under control. I hope this is something that God will resolve soon, so he won't have any more bouts of this and will be able to maintain a healthy weight as well as his strength/stamina.
